The Rare Disease Association seeks to create a strong community of patients and people living with rare diseases and to strengthen the voice of people living with rare diseases in Albania and Europe.

  1. Community

    Patients will join a community.

  2. Representation

    Patients will be represented in the main institutions of Albania and Europe.

  3. Meetings

    Patients will participate in meetings with members of Rare Sores Disease, at seminars, conferences and workshops organized by the Rare Disease Association.

  4. Information

    News and announcements will be posted on the Association’s website

  5. Online

    An online community will be established for patients with the same illness on the association’s website.